Children with disabilities

Child Care Project has been helping four families with disabled children. The help consists of weekly food packages and hygiene items.

Disabled children have a hard time in Uganda, especially in socially deprived families. Mostly it is, due to lack of vaccinations, to the extinct polio in our country. With the birth of the child, both parents can no longer work, making the family even poorer. Unfortunately, there is no social help from the state in Uganda.

Joel Kabuye

Date of birth: 2010
Disease: Cerebral Malaria, Epilepsy
Consequences: Stiff limbs, can not run alone

Joel’s situation was very critical when we first visited him. He was very neglected and hardly responded to external influences. Living together with his over 90-year-old ill grandmother, he did not get the attention and care he needed. Due to the advanced age of his great-grandmother, she was unable to lift him, for example, to wash him, to practice running with him, let alone to care for him properly. Where his parents are is unknown. They have violated their son and have nothing to do with their disabled child.

Joel’s legs can be moved without pain by another person. Leaning against a wall, he can even walk with outstretched, stiff legs as well as moving on all fours. His disability only affects his body, so he would eventually be able to attend school.

Joel also got a new mattress, new clothes, food and soap. The things he and his great-grandmother get are used very sparingly by her. We also managed to go with him to the hospital in Kampala, where he now goes to physiotherapy together with his great aunt. He also has a walker with whom he can practice running and get a stool. The more love and affection Joel got, the more he blossomed and took more part in his environment. You could see how happy he was about the new developments.

Meanwhile, Joel is with his great aunt and has the opportunity to walk with the help of walking and standing help.

Sharifa Nabunnya

Date of birth: 03.07.2001
Illness: poliomyelitis
Consequences: Deformed and shortened left leg, deformed back due to the too small wooden crutch

 

When we met Sharifa for the first time, she could only do so with the help of a simple one
Move wooden crutch. The crutch, however, had become too short and unstable for her, forcing her into dislocations. This resulted in an extraordinary strain on her hand and a malposition of her back. In addition to two new, height-adjustable crutches designed to ensure even shoulders, we also bought her a new backpack for the school in her favorite blue color to help her transport school supplies, and a new mattress, a new one School uniform, food and toiletries. Currently she lives with her grandmother, Namboze Topsta. Her mother has four more children and lives in the capital Kampala. Since she has only a small job as a waitress, she is not able to visit Sharifa regularly and financially support her.

Sharifa is currently in grade 6 at a nearby elementary school and will be attending classes 7 through 7. Then she comes to a secondary school. The next one, however, is far away. Here we have to find a solution, as Sharifah can not walk for such a long distance and we need to allow her to go to school and back so that we can continue to fulfill her wish to go to school.

Due to a lack of financial resources, we have not been able to get Sharifah a much needed, custom shoe and a daily supply.

Daphine Nandya

Date of birth: 2011
Disease: Infantile cerebral palsy
Consequences: Movement disorders as a result of brain damage, deafness

When Daphine was three days old, she got yellow fever and was hospitalized for a month. A few weeks later she was diagnosed with meningitis. As a result of these diseases, she is now suffering from severe malpositions and dysfunctions of the head and limbs. Her head is constantly overstretched, resulting in respiratory problems and pain, and her legs are twisted. Her situation has not changed for quite some time and so we found her on our first visit to her and her grandmother, who lovingly cared for her disabled grandchild. Daphine’s mother was 14 years old when she became pregnant. She met her father at school. After the birth, the mother was taken away from her parents and Daphine’s father took her to the grandmother, who has been looking after her since. He sends money when he can, but this is not often the case, as he deals with odd jobs. So the grandmother, Nassozi Hariet, is completely on her own with many more children.

Also Daphine got a new mattress from us as well as food and soap. Daphine desperately needs a new, big chair that also supports her head, because she has grown out of the old one long ago. Daphine’s grandmother wishes she would get this one soon, so that Daphine can also sit outside in the sun. But at the moment we can not fulfill your wish.

Another great wish of the grandmother we could realize. We took Daphine to a hospital and had her examined by a doctor. Daphine is now getting medication to relieve her pain and once a month physiotherapy, which she had to stop a few years ago due to lack of funds. Her grandmother will now do the physiotherapist’s daily exercises with Daphine and hopefully her condition will improve at least a little bit soon.

Daphine’s grandmother owns a piece of land that she can not order alone. Our goal is to set up a plan so that they can use it properly to provide for themselves and the many children and especially Daphine.

Justine Nabuyegga

Date of birth: 22.11.2010
Illness: poliomyelitis
Consequences: Deformation and paralysis of both legs and hands.

Justine’s disability occurred when she was only a few days old. Her parents immediately took her to the hospital, where she was given medication for three months until the family could no longer afford the hospitalization. Her two arms and legs are twisted. She can not walk or stand alone, but Justine is a very happy and lively girl. She is not restricted by her disability and laughs a lot!

During our visit, we found out that Justine is very mentally fit and would like to go to school. What we could also enable her. She also showed us that even with her twisted arms she can hold a pencil and paint on paper. The tuition is about 25-30 € per term and we will first see how Justine finds her way around the school, but you want to continue to finance the school visit. Now we need to find a solution to enable Justine to get to and from the school every day. For a wheelchair, unfortunately, we are currently missing the money,

In everyday life, she has no pain, only when her legs are flexed by another person and sometimes, when she is being carried, to change her position. Another problem affecting the whole family is the so-called jiggers (sand fleas). These infest especially the feet of Justine, eat the meat and put their eggs in it. Justine can hardly resist because of her disability, because she can not scratch or scare the jiggers otherwise. We talked to the mother about the importance of hygiene, because it keeps the sand fleas off as well.
In addition, the family received a special salve against the sand fleas.

During our visit, we brought food, soap and clothes to Justine and her family and a mattress on which all four children can sleep together. The parents were very happy and were extremely grateful for our help. Justine’s family is the only one without a piece of land and therefore very poor.

Zawede Margre

Date of birth: 1997
Disease: Infantile cerebral palsy
Consequences: Movement disorders as a result of early childhood brain damage

 

On our first visit to Zawede, we found a small, thin girl on a mattress lying in her own urine. She had an open, inflamed wound coming out of the liquid discharge at the back, which according to uncle and aunt came from a lumbar puncture performed years ago. We immediately saw that the relatives did not look after her well.

Zawede’s mother died in 2009 and her father has not been able to take responsibility for his family since. She lives with her biological uncle and his wife. Zawede is mentally handicapped and hardly reacts to external influences. Because of her shocking situation, we immediately took her to the hospital and away from her uncle and wife. There, her siblings cared for her very lovingly and Zawede’s condition improved more and more. She laughed and took with open eyes all the impressions from her environment was. The big sister is trying her best to keep the family together and support her, but she has children herself and works as a teacher.

Zawede now lives with one of her brothers in the house of the father, where she is better looked after. But this is not possible permanently. Zawede desperately needs someone to take care of her on a regular basis. Since she lives with her father, this has improved a lot. He cares lovingly for his daughter and cares for her wound, so that it heals well. He wants to work again as a farmer and order his land. We also want to make a plan for him so that he can take full advantage of his country and look after his family.

We had your old wheelchair repaired in a workshop and it can now be used again.